S.Res.292 - Expressing support for the designation of June 19, 2025, as World Sickle Cell Awareness Day in order to increase public awareness across the United States and global community about sickle cell disease and the continued need for empirical research, early detection screenings, novel effective treatments leading to a cure, and preventative care programs with respect to complications from sickle cell anemia and conditions relating to sickle cell disease. (119th Congress)
Summary
S.Res.292 expresses support for designating June 19, 2025, as "World Sickle Cell Awareness Day." The resolution aims to increase public awareness of sickle cell disease (SCD) and the need for research, early detection, treatments, and preventative care. It acknowledges SCD as a significant health problem affecting millions globally, particularly those of African, South and Central American, Saudi Arabian, Indian, and Mediterranean descent.
Expected Effects
If passed, this resolution would likely lead to increased public awareness campaigns and potentially greater funding for SCD research and treatment programs. It also encourages the formation of a Sickle Cell Disease Interagency Group to address equitable access to innovative therapies. The resolution also calls on the Department of Health and Human Services to create global policy solutions aimed at providing support for the global community with respect to SCD.
Potential Benefits
- Increased awareness of SCD and its impact on affected individuals and communities.
- Potential for greater funding and resources allocated to SCD research and treatment.
- Improved access to early detection screenings and preventative care programs.
- Development of new and innovative therapies for SCD.
- Enhanced international cooperation in addressing SCD as a global health priority.
Potential Disadvantages
- The resolution itself does not allocate any specific funding, so its impact depends on subsequent actions by Congress and federal agencies.
- Increased awareness may not automatically translate into improved access to care or better health outcomes for all individuals with SCD.
- The resolution's focus on new therapies could potentially overshadow the importance of addressing existing disparities in access to care and social determinants of health.
- There are no direct disadvantages, but the resolution's effectiveness hinges on the commitment and resources allocated by various government agencies and stakeholders.
- The resolution is non-binding, meaning that the recommendations are not legally required.
Constitutional Alignment
The resolution aligns with the Constitution's general welfare clause (Preamble) by promoting public health and well-being. It also aligns with Congress's power to appropriate funds for research and healthcare initiatives. The resolution does not infringe upon any specific constitutional rights or limitations.
Impact Assessment: Things You Care About ⓘ
This action has been evaluated across 19 key areas that matter to you. Scores range from 1 (highly disadvantageous) to 5 (highly beneficial).